This list is in the order that they were sent to me. I want to say thanks to all my Twitter Family/Support Group for being there for almost a year now, and to everybody that contributed to this list. If you are a Crohnie and want too add something to this list then please don't hesitat to get a hold of my on twitter @slip180 or leave me a comment and I will add it the first chance that I get. Btw I am going to do a plug here, if you are a Crohnie I suggest you pick up John Bradleys Foul Bowl, it is a must read for a new/newish diagnoses and a great read for those living with Crohn's Disease.
Together We Stand, Alone We Fall. Thank you again for all the contributions
What not to say to somebody that has Crohn's Disease from the tweeters on twitter
From:
- @trardmc: Oh yeah I have a bad tummy too oooh I wonder if something is going round!! arghhhhh
- @GYGIG: Can't you hold it?, Are you sure you don't have an eating disorder?
- @JennisGuts My stomach hurts too, must have been dinner, It's all the stress, take better care of yourself, Just be happy, you let things get to you too much. , Even if you didn't have Crohns you'd be a mess
- @jamietlear: congrats on eating food, oh @jamietlear well done you've eaten it all! me: I'm 28 for crying out loud!
- @aristor_cat665: you look fine, you don't look sick, why do you need to sleep so much your young & healthy
- @sandrahibbard why don't you eat curry? Why don't you drink? I know how you feel I had the runs once, You are lucky you don't put weight on
- @Pob584: Is it because of something you eat?" Yeah.....everything! You going the toilet AGAIN?" Erm, yeah!!
- @patrick_leger Can't you take a pill?" & "just use Imodium
- @deepan88 "if your ill, why arent you at home." just because im ill, doesnt mean im an invalid, let me work to earn a living, B*tch!
- @Laurie_1984: u lost weight?!lucky u!dont even have to do anything bout it!me i have to follow diets,by u come naturally
- @pueblokc changing my diet will cure me
- @yukondiva Oh ya I had crohns one time. Ya one time is a freakin lifetime
- @JVR621: Im on SSI because my work ethic was goin to kill me. Many people say they'd love to get paid to do nothing like i do. Well you dont look sick.' 'What did you do to you this time? Just try it, its not that serious.'
- @SemiColonGirl: my college roommates bf had it so I know what ur going thru, isn't that a Jewish disease; wish I could borrow it to lose a few lbs
- @gutgremlins I should eat better. Not eating vegetables isn't healthy. I should drink a lot of green tea. Take a lot of Vitamin D. Go to the Dr., what can you eat?
- @ rftgyhujikolp: I hate it when people say , are you going to the toilet again ? but you only just went 10 min ago
- @emmaelismom: how lucky I was to lose my pregnancy fat so quickly. Try breast feeding a baby on the toilet bc you can't get off.
- @slip180 Oh I think I have that, I think I was born with that. Are you sure you can eat that, just go to bed earlier.
As you read through the list you can really see one defining point! Lack of knowledge of Crohn's Disease. I have noticed that people don't want to hear & talk about the disease!! I ask why? It would take any of us on this list and those that have Crohn's Disease tops 10 minutes to describe the basics of the disease. Picking up a book or searching up on the Internet would give basic knowledge of the disease. As well if you know somebody with Crohn's Disease or are a family member I would advise to pickup a book or read on-line. I might stand alone saying this, though I appreciate that you are trying to help and be there for me, but if you don't know what you are talking about then there is no point saying anything. The trying to help part is well in the best way to say it, ticking us off. 75% of the responses either started with or ended with "I hate this" and most lists could have kept going for weeks. With basic knowledge of this disease this list would not be here or would say differnet stuff. And the day we get to partialtiy that then we have reached a breaking point. One day my friends one day.
Thanks for your time to read this. Thank you for all the people that have contributed to this without you this list would not have been possible. Please keep checking for more updates as I get more I will update.
Again Thanks for reading
Shane
